Delays in adding new newborn screening tests harm babies, families
Clarion’s independent analysis and recommendations for improving vital newborn screening programs were recently published in STAT’s First Opinion.
The article discusses the inefficient practices of newborn screening programs and offers suggestions for helping the healthcare community improve existing systems and accelerate nationwide adoption of new tests.
State-run screening programs can identify many affected individuals at birth, but their fragmented nature, as well as delays in incorporating new tests, result in unnecessary suffering for children born with addressable disorders. Many children continue to go undiagnosed because they are born in states that move slowly to adopt screening tests.
Read the full article authored by Clarion principal Robert Moy, Clarion manager Seamus Levine-Wilkinson, and independent consultant and former diagnostics executive Joseph Sterk.